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What is MyCancerJourney?

MyCancerJourney brings together an artificial intelligence platform (based on millions of real-world cancer cases) and the personalized touch of a cancer care navigator to support individualized and informed care decisions through a shared decision making framework. This solution empowers cancer patients with actionable information tailored to their unique characteristics, clinical condition, and goals for care. This consultative process encourages informed healthcare decisions that enhance quality of life, survival, and goal attainment.

What it does:

  • Provides information about treatment outcomes of similar patients 
  • Facilitates shared decision-making discussions including the tradeoffs of potential treatment options 

What it does not do:

  • Tell health providers how to practice medicine
  • Substitute clinical judgment tailored to individual patients
  • Replace clinical practice guidelines or provide clinical recommendations

Do the survival estimates reflect the outcomes of new treatments?

Survival estimates are based on observed outcomes for cancer patients from 2014-2018. Thus, the survival estimates are based on data including all treatments used during this time period, and the relative frequency of a given treatment for a given tumor type. However, the survival estimates may not reflect the full impact of treatments developed later in that time period, or not widely used until later in that period.

How recent is the data?

Survival estimates are based on observed outcomes for United States cancer patients from 2014-2018.

Which treatment course is included in the sample?

Only the first course of treatment. The first course of treatment includes all methods of treatment recorded in the treatment plan and administered to the patient before disease progression or recurrence. 

How is the overall survival estimate calculated?

Our overall survival estimates are based on information obtain from the office of vital statistics for people of the same age, race and sex as the patient.

What is the difference between relative and absolute survival?

The term “relative” is an important term when considering the benefits of cancer therapy. For example, a chemotherapy regimen that improves the five-year survival rate from 30% to 35% confers a 17% relative benefit but only a 5% absolute benefit. Furthermore, as the baseline survival decreases the relative benefit tends to increase exponentially, even if the absolute benefit remains constant. This is an important point to consider when evaluating the efficacy of new chemotherapy drugs, as results are sometimes reported as a relative benefit instead of an absolute benefit.

How are the estimates calculated?

Estimates are derived using Cox proportional-hazards models (Cox, 1972), a regression model commonly used in medical research for investigating the association between the survival time of patients and one or more predictor variables. Survival models relate the time that passes, before some event occurs, to one or more covariates that may be associated with that quantity of time. In a proportional hazards model, the unique effect of a unit increase in a covariate is multiplicative with respect to the hazard rate.

How is comorbidity defined?

Comorbidities present at the time of diagnosis were collected using the Adult Comorbidity Evaluation-27 index (ACE-27).  ACE-27 is a validated comorbidity instrument that provides a score (0–3) based on the number and severity of medical comorbidities.

ACE-27 resources:

How is tumor staging classified?

Stage refers to the extent of your cancer, such as how large the tumor is, and if it has spread. Knowing the stage of your cancer helps your doctor:

  • Understand how serious your cancer is and your chances of survival
  • Plan the best treatment for you
  • Identify clinical trials that may be treatment options for you

A cancer is always referred to by the stage it was given at diagnosis, even if it gets worse or spreads. New information about how a cancer has changed over time gets added on to the original stage. So, the stage doesn’t change, even though the cancer might.

How Stage Is Determined

To learn the stage of your disease, your doctor may order x-rays, lab tests, and other tests or procedures. See the section on Diagnosis to learn more about these tests.

Systems that Describe Stage

There are many staging systems. Some, such as the TNM staging system, are used for many types of cancer. Others are specific to a particular type of cancer. Most staging systems include information about:

  • Where the tumor is located in the body
  • The cell type (such as, adenocarcinoma or squamous cell carcinoma)
  • The size of the tumor
  • Whether the cancer has spread to nearby lymph nodes
  • Whether the cancer has spread to a different part of the body
  • Tumor grade, which refers to how abnormal the cancer cells look and how likely the tumor is to grow and spread

The TNM Staging System

The TNM system is the most widely used cancer staging system. Most hospitals and medical centers use the TNM system as their main method for cancer reporting. You are likely to see your cancer described by this staging system in your pathology report, unless you have a cancer for which a different staging system is used. Examples of cancers with different staging systems include brain and spinal cord tumors and blood cancers. 

In the TNM system:

  • The T refers to the size and extent of the main tumor. The main tumor is usually called the primary tumor.
  • The N refers to the number of nearby lymph nodes that have cancer.
  • The M refers to whether the cancer has metastasized. This means that the cancer has spread from the primary tumor to other parts of the body.

When your cancer is described by the TNM system, there will be numbers after each letter that give more details about the cancer—for example, T1N0MX or T3N1M0. The following explains what the letters and numbers mean:

Primary tumor (T)

  • TX: Main tumor cannot be measured.
  • T0: Main tumor cannot be found.
  • T1, T2, T3, T4: Refers to the size and/or extent of the main tumor. The higher the number after the T, the larger the tumor or the more it has grown into nearby tissues. T’s may be further divided to provide more detail, such as T3a and T3b.

Regional lymph nodes (N)

  • NX: Cancer in nearby lymph nodes cannot be measured.
  • N0: There is no cancer in nearby lymph nodes.
  • N1, N2, N3: Refers to the number and location of lymph nodes that contain cancer. The higher the number after the N, the more lymph nodes that contain cancer.

Distant metastasis (M)

  • MX: Metastasis cannot be measured.
  • M0: Cancer has not spread to other parts of the body.
  • M1: Cancer has spread to other parts of the body.

What are the case counts for primary sites and select variables, such as demographic and treatment items?

Cancer SiteCountAverage Age% Female% Male
Bladder19,92071.1922.6377.36
Breast101,60361.1198.971.01
Cervix6,42649.23100N/A
Colon37,70265.8853.3346.65
Head/Neck21,99763.6326.1273.86
Kidney27,34463.1937.6662.34
Liver15,57364.625.674.37
Lung67,84669.845.9953.99
Ovary7,78861.0699.97N/A
Pancreas17,38968.7548.0751.89
Prostate65,31866.99N/A99.99
Rectal12,26962.1438.3661.61
Stomach9,87565.7740.5359.44
Thyroid16,33250.9374.1725.78
Uterus17,69760.5399.99N/A
Total622,657

Clinical validation?

In addition to statistical validation, the models have also been reviewed by surgical, medical, and radiation oncologists.

Please describe the model performance.

The model’s likelihood and concordance were used to evaluate the performance of each cancer-site specific model. The concordance, which also assesses predictive performance, is calculated as the proportion of all usable patient pairs in which the prediction and actual outcome agree. The perfect model will have a concordance of 1 and the non-informative model will have a concordance of 0.5.

Goodness of fit of the model, which refers to the amount of agreement between observed and predicted probability of survival estimates, was assessed through the calibration slope as well as the likelihood.

How has the accuracy of these calculators been validated?

The data used for MyCancerJourney models have been both internally and externally validated. 

Statistical accuracy has been estimated using the model’s concordance.  These models have been validated by experts at Erasmus Medical Center, Rotterdam, Netherlands.  The model’s clinical significance was validated through reviews by oncologists.

How often are the models updated?

Annually

Where does the data come from?

Estimates are derived from over 2-million cases from over 500 hospitals and cancer treatment centers, ambulatory surgery centers, clinical laboratories, as well as physician and other outpatient offices collected since 1995 . Collection and reporting standards are in accordance with the National Program of Cancer Registries (NPCR); Centers for Disease Control and Prevention (CDC); North American Association of Central Cancer Registries (NAACCR); Surveillance, Epidemiology, and End Results Program (SEER) of the National Cancer Institute (NCI); and the American College of Surgeons (ACoS).

Do the estimates pull from clinical trial information?

No. Because treatment trials limited by recruitment, typically exclude patients with comorbidity and fail to differentiate populations based on gender, age and race their outcomes.

Where was MyCancerJourney developed?

MyCancerJourney was developed at the Washington University School of Medicine in St. Louis. MyCancerJourney survival estimates have been validated by experts at Erasmus Medical Center, Rotterdam, Netherlands.

How do I get access to MCJ?

Email admin@mycancerjourney.com to request access to the system.

Is there any documentation to help me use MCJ?

Absolutely. The following user guides are designed to help Physicians add and manage patients, generate survival curves and print shared decision-making reports.

Download PDFGetting Started with MyCancerJourney

Download PDFAdding New Patients

Download PDFPreparing for your Patient’s Visit

Download PDFDuring your Patient’s Visit

How do I login to MyCancerJourney?


Go to: https://app.mycancerjourney.com, click “Login” on the top right. Use your designated username and password to login.

Why haven’t I received my email with login credentials from the MyCancerJourney Administrator?

Check your spam folder. The email will be from “MyCancerJourney Administrator <do_not_reply@mycancerjourney.com>” and will be sent via the Amazon SES service (amazonses.com). Search your mail for “MyCancerJourney.”

How do I reset my password?

Navigate to https://app.mycancerjourney.com/forgot, enter your email address, and click “Send Password Reset Link.” You will receive an email from “MyCancerJourney Administrator <do_not_reply@mycancerjourney.com>” with instructions on how to reset your password. If you don’t receive this email in a few minutes, check your spam folder to make sure it didn’t end up there.

Click the “Reset Password” link in the email, and enter a new password. This will set your password. Once your password is reset, you will be redirected to the login screen, where you can use the password you just created to log into the system.

My Shared Decision-Making reports are not displaying. What do I do?

Make sure your pop-up blocker is turned off.

For Chrome:

By default, Chrome will notify you when a pop-up is blocked and give you an option to see it. To turn off pop-up blocker, follow these instructions:

  1. Click the three dots to the right of the address bar
  2. Select “Settings
  3. Click “Advanced” at the bottom of the page
  4. Under “Privacy and Security“, click the “Content Settings” button
  5. Select Pop-ups and redirects
  6. To disable the pop-up blocker uncheck the “Blocked (recommended)” box

For Safari:

  1. From the “Safari” menu, select “Preferences
  2. Click “Websites” at the top of the window
  3. Select “Pop-up Windows
  4. Select “Allow” next to the “When visiting other websites” option

For Firefox:

  1. Select “Preferences” from the Firefox menu.
  2. Select “Privacy and Security
  3. Uncheck the “Block Pop-Up Windows” box
  4. Close the window.
  5. Click “OK

For Edge:

  1. Click the “Settings and More” button.
  2. Click “Settings
  3. Click “Privacy & Security
  4. Scroll down to “Security
  5. Click the “Block Pop-Ups” switch to “Off”

I didn’t find my question here; where can I go to find the answer to my question?

By Email: support@mycancerjourney.com

How recent is the data?

Survival estimates are based on observed outcomes for United States cancer patients from 2014-2018.

What information can be found in my health record

health record is created any time you see a health professional such as a doctor, nurse, dentist, chiropractor, or psychiatrist. You could find the following in your health record:

  • Your medical history and your family’s medical history
  • Labs and x-rays
  • Medications prescribed
  • Alcohol use and sexual activity
  • Details about your lifestyle (smoking, exercise, recreational drug use, high-risk sports, stress levels)
  • Doctor/nurse notes
  • Results of operations and proceduresGenetic testing
  • Research participation
  • Any Information you provide on applications for disability, life or accidental insurance with private insurers or government programs
  • Driver’s License
  • Social Security Number
  • Financial information such as credit cards and payment info

Support Hotlines and Websites

This section is a list of resources – both hotlines and websites – that may be of help. This information is not a substitute for professional advice or care. If you are in need of support, please reach out to your doctor, one of these organizations, another local organization near you, a loved one or friend.

Support Hotlines and Websites:

  • American Psychological Oncology Society
    APOS Toll-Free Helpline, part of the Cancer Support Helpline, helps cancer patients and their caregivers with emotional support by phone, and by connecting them with emotional health resources in their community: 866-276-7443 (866-APOS-4-HELP).
  • Livestrong Foundation
    Free services for cancer patients and survivors and advocates for policies that improve their access to care and quality of life: 855-220-7777.
  • National Mental Health Association
    Information on mental health topics and referrals, access to specialists: 800-969-6642.
  • National Suicide Prevention Lifeline
    24-hour, toll-free, confidential suicide prevention hotline available to anyone in suicidal crisis or emotional distress: 800-273-TALK (8255) or 888-628-9454 (en Espanol).

Other Helpful Sites:

  • https://seer.cancer.gov/registrars/
  • https://www.cancer.gov/
  • https://www.ncra-usa.org/
  • https://www.naaccr.org/
  • https://www.cancer.org/
  • http://cancerbulletin.facs.org/forums/help
  • https://cancercontrolplanet.cancer.gov/
  • https://facs.org/cancer/coc/fordsmanual.html
  • https://cancerstaging.org/CSE/Registrar/Pages/default.aspx
  • https://tools.usps.com/go/ZipLookupAction_input
  • https://www.cdc.gov/niosh/docs/2011-173/
  • https://www.bls.gov/soc/
  • https://www.nccn.org/
  • http://www.breastcancer.org/
  • https://www.nlm.nih.gov/
  • http://www.anatomyatlases.org/
  • https://www.melissa.com/
  • http://oralcancerfoundation.org/
  • http://www.pathologyoutlines.com/
  • https://www.txhima.org/
  • http://www.whonamedit.com/

Who has access to my health records

Many more people than you would ever want, including people outside the health care industry.

  • Insurance companies
  • Government agencies especially if you receive Medicare, Medicaid, SCHIP, SSI, Workers Comp or any local, state or federal assistance
  • Employers
  • Banks, Financial Institutions
  • Researchers
  • If you are involved in a court case, your health records can be subpoenaed and available to the public
  • Marketers
  • Drug companies
  • Data miners
  • Transcribers in and outside the U.S.
  • Many health websites collect information about you

Glossary

  • Abscess
    A collection of pus.
  • Acute Withdrawal Syndrome
    Signs and symptoms that occur after stopping a drug or alcohol.
  • AIDS/HIV
    Acquired Immune Deficiency Syndrome (AIDS) is a disease caused by the human immunodeficiency virus (HIV). The virus attacks the body’s own defense or immune system, which may cause certain infections or tumors to develop.
  • Alcohol abuse
    The use of alcoholic beverages despite negative consequences. Ambulatory
    Able to walk around.
  • Amputation
    The surgical removal of a body part, generally a toe, foot, arm or leg.
  • Angina
    Also known as angina pectoris or chronic exertional angina. It is chest pain resulting from less blood flow to the heart; it may occur only during exercise or activity (exertion) and get better with rest (stable angina).
  • AODM
    Adult-Onset Diabetes Mellitus, also known as “Type 2” diabetes or non-insulin-dependent diabetes mellitus (NIDDM). The body can’t use insulin made.
  • Arrhythmias
    Heartbeat or rhythm that is not regular or “even.” It may be too fast or too slow. Arterial insufficiency
    Decreased blood flow in the arteries, often from atherosclerosis or narrowing of the arteries. It is also known as peripheral arterial disease (PAD).
  • Ascites
    Buildup of fluid in the belly; it is often caused by liver failure.
  • Asthma
    Airways within the lungs are narrowed at times, causing less air to get into and out of the lungs. Airways may become narrowed or smaller from allergies, exercise, smoke, colds, or other things. Unlike COPD, the airways recover and the lungs can work normally after an attack.
  • Atrial Fibrillation or Flutter
    Irregular heartbeat or rhythm in the atria, the two top chambers of the heart, which may cause the heart to beat faster than normal.
  • Baseline pO2
    Normal oxygen levels.
  • Bilirubin
    A chemical that is produced in the blood from the breakdown of old red blood cells. Bipolar Disorder
    Also known as manic-depressive illness. It causes extreme shifts in mood, energy, and ability to function.
  • Body Mass Index (BMI)
    Having too much body fat and indicates too much weight for a given height. Using height and weight to calculate a body mass index (BMI), obesity is defined as a BMI greater than 30. A BMI between 25 and 29.9 is considered overweight.
  • Bypass
    An operation done when blood vessels of the heart become narrowed (by plaques or fatty deposits) by creating a detour or bypass around the blockage. Doctors use blood vessels from other parts of the body or with a man-made graft or tube to bypass or detour blood to the heart muscle.
  • Cancer Site
    The type of cancer is often named after the place in the body where it started. For example, lung cancer begins in the lungs, breast cancer begins in the breast, and so on. Cancers found in the blood stream, bone marrow or lymph nodes are called leukemias or lymphomas.
  • CD4+
    A type of white blood cell used to track or monitor HIV infection.
  • Chronic Insufficiency
    Blood flow from the legs back to the heart is slowed, often due to blood clots or varicose veins (leaky valves in the legs).
  • Chronic Malabsorption Syndrome
    The body has trouble absorbing nutrients from food in the gut into the blood. It causes malnutrition.
  • Chronic Supplemental O2
    Oxygen needed at baseline.
  • Chronic Suppressive Therapy
    Medications or drugs used to slow down or stop the growth of cancer cells.
  • Cirrhosis
    A liver disease that results in healthy tissue being replaced by scar tissue so the liver does not work as well.
  • Comorbidity
    These are other diseases or medical problems you may have besides cancer. Include diseases or medical problems that you take medicine for and those that you don’t take medicine for.
  • Congestive Heart Failure
    The heart isn’t working as well as it should and has trouble getting blood to the brain and the rest of the body.
  • CO2 Retention
    High levels of CO2 in the blood; it is seen in patients with COPD.
  • Connective Tissue Disorder
    Any disease of the connective tissue which is the structure of framework that holds the body together.
  • COPD (also called Chronic Obstructive Pulmonary Disease)
    Airways within the lungs are permanently narrowed, causing less air to get into and out of the lungs. Many people have trouble breathing or get shortness of breath.
  • Coronary Artery Bypass Graft (CABG) (or Bypass Surgery)
    An operation done when blood vessels of the heart become narrowed (by plaques or fatty deposits) by creating a detour or bypass around the blockage. Doctors use blood vessels from other parts of the body or with a man-made graft or tube to bypass or detour blood to the heart muscle.
  • Coronary Artery Disease
    Also called atherosclerosis or hardening of the arteries of the heart). A blockage or buildup that thickens the blood vessel walls of the heart and reduces the amount of oxygen and nutrients the heart can get.
  • Coronary Disease
    Heart problems caused by high sugar where the heart doesn’t work as well as it should.
  • Coronary Stent
    A mesh tube placed in the blood vessels of the heart to keep the vessel walls open. It is done during angioplasty when a small catheter with a balloon is used to open up the blood vessels of the heart and improve blood flow.
  • Coumadin
    The generic form is “warfarin”; it is a pill taken to prevent blood clots.
  • Creatine
    A chemical in the body that can show how well the kidneys are working.
  • Delirium Tremnes (DTs)
    “The shakes”; caused by alcohol withdrawal.
  • Dementia
    Also known as “senility”, dementia is not a specific disease, but rather a group of signs that the brain isn’t working well. People with dementia may have trouble thinking, memory problems, trouble making decisions or may not think well enough to do normal activities.
  • Diabetes Mellitus
    High blood sugar caused by too little insulin made in the body or insulin not being properly used in the body.
  • Diabetic Ketoacidosis (DKA)
    Diabetic ketoacidosis; it is a complication of diabetes mellitus characterized by high sugar, too little insulin, or acid in the blood, and ketone bodies.
  • Dialysis
    A machine that filters the blood after the kidneys stop working. It may be for a short time (acute dialysis) until the kidneys get better or for a long time (chronic dialysis) if the kidneys are permanently not working. Diastolic Blood Pressure (DBP)
    The bottom number in the blood pressure reading. It is the pressure found when the heart is filled with blood and before it beats.
  • Disease Out of Control
    Blood cancer not responding to treatment of therapy.
  • DVT (Deep Vein Thrombosis)
    A blood clot in a deep vein, usually in the leg.
  • Dx
    Diagnosis.
  • Dyspnea
    Shortness of breath or trouble breathing.
  • Dyspnea at Rest
    Airways within the lungs are permanently narrowed, causing less air to get into and out of the lungs. Many people have trouble breathing or get shortness of breath.
  • ECG (electrocardiogram or EKG)
    A tool used at the doctor’s office to measure the electrical activity of the heart. Leads are placed on the patient’s chest and a tracing of the heart rhythm is printed out.
  • Ejection Fraction
    This term describes how much blood is pumped out of the heart with each heartbeat. It is expressed as a percentage – 55%, 30%, etc.
  • Encephalopathy
    A change in mental status or alertness caused by the long-term effect of high blood pressure on the brain. Also called hepatic encephalopathy. Changes in the brain due to toxins formed when the liver doesn’t work normally. Patients may have trouble thinking or tremors.
  • End-organ Failure
    Damage to various parts of the body from poor sugar control.
  • End Stage Renal Disease (ESRD)
    The kidneys permanently stop working and you need to be on dialysis.
  • Epistaxis
    Bloody nose.
  • Esophageal Bleeding
    Bleeding from veins or blood vessels in the esophagus, the tube that carries food from the mouth to the stomach. It is often caused by portal hypertension and cirrhosis of the liver.
  • FEV1
    Forced expiratory volume in one second; part of the lung or pulmonary function testing (PFT).
  • Filter
    A filter that sits in the inferior vena cava (IVC – the main vein that carries blood from the legs) and is designed to stop blood clots from getting to the lungs.
  • Fulminant AIDS
    The immune system or the body’s defense is very weak and the patient cannot fight infections. HIV counts are high and CD4+ counts are low.
  • Gangrene
    When part of the body loses its blood supply and tissue death occurs. It generally occurs in toes, feet, fingers or hands.
  • Hemiplegia
    Paralysis or loss of function or movement of one half of the body.
  • Heparin
    A type of shot given to prevent blood clots.
  • Hepatitis
    Inflammation or damage to the liver caused by infections, toxins (such as alcohol), or the immune system. HIV+
    An infection with the Human Immunodeficiency Virus (HIV), which attacks the body’s defense system and may lead to Acquired Immune Deficiency Syndrome (AIDS).
  • Hypertension
    High blood pressure.
  • IDDM
    Insulin Dependent Diabetes Mellitus, also known as “Type 1” diabetes. IDDM usually begins in childhood and is caused by the body to stop making insulin. Patients need to take insulin in the form of shots or pills.
  • Immunosuppressant Medication
    Medications or drugs that lower the immune system or the body’s defense system.
  • Inflammatory Bowel Disease (IBD)
    Intestines become red and swollen (inflamed) at times and cause vomiting, diarrhea, belly pain, and weight loss. Crohn’s Disease and Ulcerative Colitis (UC) are both part of IBD.
  • Intermittent Claudication
    Pain in the lower legs (calf pain), when walking or exercising that, is relieved by rest.
  • Jaundice
    Yellowish coloring of the skin and/or the whites of the eyes.
  • Kaposi’s Sarcoma (KS)
    A type of cancer found on the skin or lining of mouth and nose in patients with very weak immune systems. It is caused by a virus and often seen in AIDS patients.
  • Leukemia
    Cancer of the blood or bone marrow, where too many blood cells are made.
  • Lymphoma
    A blood cancer of cells that are part of the lymph system; they are divided into either Hodgkin Lymphoma or Non-Hodgkin Lymphoma (NHL).
  • Major Depression
    Also known as clinical or unipolar depression. A medical illness that may include feeling sad or hopeless, little or no interest or happiness in normal activities, and trouble eating or sleeping.
  • Malignant Papilledema
    Very high blood pressure causing swelling of the optic nerve, which is the nerve to the eye needed for sight. It may cause blurriness or loss of vision.
  • Metastatic
    Cancer that has spread from the original or first site to nearby tissue or other parts of the body.
  • Morbid Obesity
    Being more than 100 lbs over ideal body weight or have a BMI >38; it is also known as “severe obesity.”
  • Multiple Sclerosis (MS)
    A disease that affects the brain and spinal cord and may cause vision changes, numbness, or trouble moving. It is caused by the body’s own defense system (the immune system) attacking the covering around certain nerves. Attacks come and go and may worsen over time.
  • Myasthenia Gravis
    A disease-causing tiredness and muscle weakness, generally seen in eye, mouth or face muscles.
  • Mycobacterium Avium Intracellulare (MAI)
    A form of tuberculosis (TB) seen in patients with very weak immune systems. It is often seen in AIDS patients.
  • Myeloma
    Cancer of plasma cells, which are cells that are part of the immune system and are found in the bone marrow.
  • Myocardial Infarction (MI)
    (MI) – heart attack.
  • Nephropathy
    Kidney problems from high sugar that cause the kidneys not to work well. Patients may need dialysis.
  • Neurologic Deficit
    Brain, spinal cord, muscles or nerves don’t work as well as they should because of a stroke. Examples include trouble speaking or trouble moving one part or side of the body.
  • Neurologic Residual
    Part of the brain damaged in a stroke doesn’t work as well as it used to. Examples include trouble speaking or trouble moving one part or side of the body.
  • Neuropathy
    Nerve problems from high sugar that may cause numbness or less sensation of a body part.
  • NSAIDS
    Non-steroidal anti-inflammatory drugs such as aspirin, ibuprofen or naproxen.
  • Obesity
    Having too much body fat and indicates too much weight for a given height. Using height and weight to calculate a body mass index (BMI), obesity is defined as a BMI greater than 30. A BMI between 25 and 29.9 is considered overweight.
  • Oral Agents
    Pills taken to help control diabetes or “sugar”.
  • Pacemaker
    A medical device placed under the skin of the chest that helps the heart maintain a stable or “normal” heartbeat.
  • Pancreatitis
    Inflammation or damage to the pancreas. It may be caused by gallstones, alcohol or other causes.
  • Paralysis
    Muscles aren’t working and there may be loss of feeling or movement. It may be caused by damage to the brain, spine or other parts of the nervous system.
  • Paraplegia
    Paralysis or loss of function or movement of the legs.
  • Parkinson’s Disease
    A brain disorder that may cause trouble with movement, balance or speech. People with Parkinson’s Disease often have a tremor.
  • Paroxysmal Nocturnal Dyspnea
    Shortness of breath that wakes someone from sleeping; it generally occurs about one to two hours after sleeping.
  • Percutaneous Transluminal Coronary Angioplasty (PTCA)
    Also called balloon angioplasty or angioplasty. A procedure where a small catheter with a balloon is used to open up the blood vessels of the heart. The catheter is generally introduced into blood vessels at the top of your leg, although other sites may be used.
  • Peripheral Artery Disease
    Blockage of arteries or blood vessels that bring blood to the body, especially the legs. It may cause pain in the legs when walking, or at rest when more severe.
  • Phlegmon
    Infection of the pancreas and/or the soft tissues around the pancreas.
  • Pneumocystis Pneumonia (PCP)
    A lung infection in patients with very weak immune systems. It is often seen in AIDS patients.
  • Portal Hypertension
    High blood pressure within blood vessels of the liver, which may cause a fluid collection or swelling of the belly. It is often caused by cirrhosis of the liver.
  • Pseudocyst
    Collection of fluid around the pancreas, generally caused by pancreatitis.
  • Pulmonary Embolism (PE)
    A blood clot in blood vessels of the lungs.
  • Pulmonary Insufficiency
    Breathing problems where the lungs cannot take in enough oxygen for the body.
  • Relapse
    When a disease returns or comes back.
  • Remission
    When a disease (cancer) is responding to treatment or is under control.
  • Renal Insufficiency
    The kidneys aren’t working as well as they should and have trouble getting rid of waste and water. It is also known as renal failure.
  • Restrictive Lung Disease
    Any disease that stiffens the lungs or prevents the lungs from expanding as much as they should.
  • Retinopathy
    Eye problems from high sugar causing trouble seeing or blindness.
  • Rx
    Prescription.
  • Schizophrenia
    A psychiatric or brain disease that may cause unusual thoughts, emotions and behaviors. People with schizophrenia may see or hear things that other people don’t see or hear. They may also believe that others are trying to control their thoughts or trying to hurt them.
  • Secondary End-Organ Failure (renal, cardiac, CNS)
    Other organs or body parts stop working well as the connective tissue disorder gets worse.
  • SEER Stage
    Staging refers to how far your tumor may have spread from the place in your body where it started. Staging looks at tumor spread in three ways: 1) under a microscope on a cellular level, 2) with radiologic imaging (CT scans, MRIs, PET scans, etc.), and 3) with a physical exam or clinical evidence of disease.
  • Sick Sinus Syndrome
    Unusual heartbeat or rhythm caused by a problem with the sinus or sino-atrial (SA) node in the heart, which is the heart’s natural pacemaker.
  • Solid Tumor
    A mass or group of unusual cells in the body which may or may not be cancer. It is generally named by the type of cells that form them. They are NOT cancers of the blood.
  • Stress Test
    Also known as a treadmill test or an exercise test. It is done to see how well your heart works during exercise or activity (exertion). A thallium stress test is when dye is injected into the blood and pictures or images of the heart show how well blood is flowing during exercise or activity.
  • Stroke
    Also known as a “brain attack.” It is caused by not enough blood reaching the brain, from either a blood clot in the brain or an artery in the brain breaks and bleeds.
  • Substance Abuse
    Harmful or hazardous use of certain substances, such as alcohol or illegal drugs.
  • Thoracic or Abdominal Aneurysm
    An enlarged or bulging part of the aorta, the main blood vessel of the body. The bulge is caused by a weakness in the blood vessel wall. The bulge or dilation is generally measured in centimeters (cm).
  • Transfusion
    Blood transfusion; blood is given through an IV line into the body.
  • Transient Ischemic Attack (TIA – or “Mini-Stroke”)
    There is less blood flow to part of the brain. It may cause numbness, vision changes, trouble walking or speaking that lasts less than 24 hours or one day.
  • Ulcers
    Breakdown or hole in the lining of the stomach or intestine caused by acid, bacterial infection, NSAIDs, or smoking.
  • Uncontrolled Cancer
    Cancer that is not responding to treatment or therapy.
  • Unstable Angina
    Severe or prolonged chest pain or chest pain that continues with rest. You should notify your doctor if you have this type of pain.
  • Vertigo
    A type of dizziness; a feeling of spinning or whirling while standing still.

Patient Supply Information

Can my personal health information be used and disclosed without any notice to me or without my informed consent at the time of treatment

Yes.

The Amended HIPAA Privacy Rule states only that you must receive a Privacy Notice telling you how your personal health information will be used and disclosed. Section 164.520(c) (2) (i) (A).
Privacy Notices are often mistaken for consent forms, but they are simply notices telling you what will happen to your medical records.

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